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July is National Hemochromatosis Screening and Awareness Month

Written by Sotera Digital Health | Jul 18, 2023 3:00:00 PM

July marks an important month in healthcare awareness –National Hemochromatosis Screening and Awareness Month. This month-long observance is dedicated to spreading knowledge about hemochromatosis, a genetic disorder characterized by excessive iron absorption. As a trusted supplier of wireless vital sign monitors for hospitals, we recognize the significance of raising awareness about this condition and supporting affected individuals. In this blog post, we delve into the importance of National Hemochromatosis Awareness Month and highlight key aspects of the disorder.

 

History of Hemochromatosis Screening and Awareness Month

Hemochromatosis is an iron storage disorder that causes the body to absorb excessive iron from foods and other sources, such as iron-fortified multivitamin supplements. This extra iron can gradually accumulate in the body’s tissues and organs, particularly liver cells, the heart, the pancreas, joints, and the pituitary gland. Left untreated, the iron buildup may eventually cause tissue and organ damage. Primary hemochromatosis is an inherited disorder also known as hereditary hemochromatosis. Anemia, alcoholism, and other conditions can all lead to secondary hemochromatosis.

Hereditary hemochromatosis is the most common type of hemochromatosis in adults in the United States. Family members share genes, behaviors, lifestyles, and environments, all of which can impact health and disease. Having one or more close relatives who suffer from a chronic condition makes you more susceptible to that condition. So, a familial medical history is essential in understanding the health issues that run in your family.

In 2007, Dr. Margit Krikker, M.D., founder of the Hemochromatosis Foundation, Albany, New York, established July as the month to screen for hemochromatosis in the United States. Dr. Krikker once took out a full-page ad in the “New York Times” to raise awareness of this metabolic disorder. She was a true trailblazer, and we followed in her footsteps recognizing July as the National Hemochromatosis Screening and Awareness Month.

 

Understanding Hemochromatosis

Hemochromatosis is a hereditary disorder that causes the body to absorb and store too much iron from consumed food. Over time, this excess iron builds up in various organs, such as the liver, heart, pancreas, and joints. If left untreated, hemochromatosis can lead to severe complications, including liver cirrhosis, heart problems, diabetes, and joint pain.

 

Signs and Symptoms

Hemochromatosis symptoms can vary from person to person, and some individuals may not exhibit noticeable signs initially. Common symptoms may include fatigue, joint pain, abdominal pain, unexplained weight loss, and bronze or grayish skin coloration. It is important to consult a healthcare professional if you experience persistent symptoms or have a family history of hemochromatosis.

 

Causes

Hereditary hemochromatosis is most commonly caused by certain variants in the HFE gene. If you inherit two of these variants, one from each parent, you have hereditary hemochromatosis and are at risk for developing high iron levels. If you have a family member, especially a sibling, who is known to have hereditary hemochromatosis, talk to your doctor about genetic testing.

In the United States, about 1 in 300 non-Hispanic White people has hereditary hemochromatosis, with lower rates among people of other races and ethnicities. Many people with hereditary hemochromatosis don’t know they have it. Early symptoms of hemochromatosis, such as feeling tired or weak, are common and can cause it to be confused with a variety of other diseases. Men with hereditary hemochromatosis are more likely to develop complications and often at an earlier age. An estimated 9% (about 1 in 10) of men with hereditary hemochromatosis will develop severe liver disease. However, most people with hereditary hemochromatosis never develop symptoms or complications.

 

Screening and Diagnosis

Screening for hemochromatosis usually involves a blood test to measure the iron levels in the body. Genetic testing may also be performed to identify specific gene mutations associated with the disorder. If diagnosed with hemochromatosis, healthcare providers can work with patients to develop an individualized treatment plan.

 

Treatment Options

The primary treatment for hemochromatosis is therapeutic phlebotomy, a process that involves regular blood removal to reduce iron levels. In some cases, iron-chelating medications may be prescribed to help manage iron overload. Treatment plans are tailored to each patient's unique needs and may require ongoing monitoring to maintain healthy iron levels.

 

Preventing Complications from Hemochromatosis

If you or your family members have hemochromatosis, your doctor may suggest ways to lower the amount of iron in your body. The earlier hemochromatosis is diagnosed, the less likely you are to develop serious complications—many of which can cause permanent problems. If you are diagnosed with hemochromatosis, regularly scheduled blood removal is the most effective way to lower the amount of iron in your body. Your doctor may also recommend:

  • Annual blood tests to check your iron levels;
  • Liver biopsy to check for cirrhosis;
  • Iron chelation therapy, if you cannot have blood removed. This involves medicine taken either orally or injected to lower the amount of iron in your body;
  • Dietary changes, such as avoiding multivitamins, vitamin C supplements, and iron supplements, which can increase iron throughout your body;
  • No alcohol use (because alcohol increases the risk of liver damage); and
  • Steps to prevent infections, including not eating uncooked fish and shellfish and getting recommended vaccinations, including those against hepatitis A and B.

 

The Impact of Awareness

Raising awareness about hemochromatosis is crucial for early detection, diagnosis, and treatment. By increasing awareness, we can promote regular screenings, educate healthcare professionals, and empower individuals to recognize potential symptoms. Early intervention plays a significant role in managing hemochromatosis and minimizing the risk of complications.

 

Support and Advocacy

National Hemochromatosis Awareness Month provides an opportunity to offer support to individuals and families affected by this disorder. Engage in local support groups, online communities, and nonprofit organizations dedicated to raising awareness and advocating for improved care and resources. Together, we can foster a supportive environment and empower individuals impacted by hemochromatosis.

 

Observing National Hemochromatosis Screening and Awareness Month

 

Get Screened

If you haven't been screened for hemochromatosis, take the opportunity to get tested. Consult with your healthcare provider about the appropriate screening methods, which usually involve a blood test to measure iron levels. Early detection can help in managing the condition effectively.

 

Raise Awareness

Spread the word about hemochromatosis by sharing information on social media, organizing awareness events, or distributing educational materials. Use hashtags like #HemochromatosisAwareness or #KnowYourIronLevels to reach a broader audience and encourage discussions about the disorder.

 

Support Advocacy Efforts

Get involved with advocacy organizations and support their initiatives. Participate in fundraisers, donate to research efforts, or volunteer your time to raise funds and increase awareness about hemochromatosis.

 

Educate Others

Host informational sessions or webinars to educate your local community, schools, or workplaces about hemochromatosis. Share personal stories or invite healthcare professionals to speak about the condition, its symptoms, treatment options, and the importance of regular screening.

 

Connect with Support Groups

Join online or local support groups for individuals with hemochromatosis and their families. These groups provide a space to share experiences, seek advice, and find emotional support. Connecting with others who understand the challenges of living with hemochromatosis can be empowering and comforting.

Remember, your efforts to raise awareness and support individuals affected by hemochromatosis can make a difference in their lives. By observing National Hemochromatosis Screening and Awareness Month, you contribute to a stronger support network and improved understanding of the condition.

As we observe National Hemochromatosis Awareness Month this July, let us unite in spreading knowledge and compassion about this genetic disorder. By increasing awareness, promoting early detection, and supporting affected individuals, we can make a positive impact on their lives. Sotera Digital Health remains committed to supporting healthcare professionals in delivering the best care and monitoring solutions for individuals with hemochromatosis.

Remember, knowledge is power, and together, we can raise awareness and help transform lives affected by hemochromatosis.

Sotera Digital Health is proud to support National Hemochromatosis Awareness Month and remains dedicated to advancing healthcare through innovative solutions.